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This information sheet is about Steroid therapy in terms of Myeloma management. It includes what are steroids;Why are steroids used to manage myeloma;How are steroids given;What is the difference between different types of steroids used in myeloma;What potential side effects are associated with steroid use;What can be done to manage and minimise the side effects associated with steroids; and What can be done to manage and minimise the side effects associated with steroids.
This short information sheet helps describe the test called FISH that can be undertaken on a sample of your bone marrow. Understanding the particular genetic mutations that may be present in your myeloma may help inform your Haematologist as to how best to manage your myeloma. They may also help determine if you have a higher risk or standard risk myeloma. In the future we may be able to more specifically match the right treatment to the right genetic mutations that occur in those with myeloma.
This information sheet provides details about Thalidomide in Myeloma. Thalidomide belongs to a group of drugs called immunomodulatory drugs (IMiDs). IMiDs work by modifying the body’s immune system. This information sheet also provides information about How thalidomide works;How thalidomide differs from chemotherapy;When is thalidomide prescribed;possible side effects from taking how they could be managed.
Pain is the most common symptom of myeloma and can greatly affect all areas of your life, especially if it is untreated or poorly managed. This information Sheet will explore what the main types and causes of pain in myeloma are, as well as looking at the different approaches used to manage pain effectively. It will also emphasise the need for honest communication with your doctor about the impact that pain is having on your life and highlight some of the things that you can do for yourself to help relieve your pain.
This is a personal reflection on living with Myeloma. Greg O’Donnell has been living with myeloma for the past 19 years, having had smouldering myeloma for 12 years and then active myeloma requiring treatment over the past 7 years. This reflection could help us to learn from Greg O’Donnell experiences.
This guide is written for patients who have been diagnosed with myeloma. It will also be helpful for their families, carers and friends. It provides comprehensive information on myeloma and its treatment and management. The purpose of this guide is to promote a better understanding of the disease, which will enable informed decisions about care and treatment options. Being informed is a key step in learning to manage and cope. Some of the more unusual or technical words appear in bold the first time they are used and are described in the glossary of medical terms at the back of the guide.
This guide is written specifically for patients who have been diagnosed with myeloma and who are at risk of, or are experiencing the troubling side effect of peripheral neuropathy. It will also be helpful for their families and friends. Peripheral neuropathy is a common side effect of some therapies for myeloma.
When you have myeloma it is important to eat a well balanced diet and to maintain a good fluid intake. Eating a well balanced diet will help maintain muscle mass and strength, increase energy levels, and may help to promote recovery after periods of treatment. This Fact Sheet includes information about What is a well balanced diet; What makes a well balanced diet difficult to maintain when you have myeloma;Tips to maintain a healthy diet; What does Calcium have to do with Myeloma; Important to Drink Plenty of fluids;Diet as an alternative to conventional treatment.
This fact sheet includes informaition about How is Bone Disease Monitored;How is Bone Disease Monitored; What are Bisphosphonates; Who Benefits From Bisphosphonates; Different Types of Bisphosphonates;The Possible Side Effects of Bisphosphonates.
Most people with myeloma will experience fatigue. Fatigue can be present before diagnosis and is often an indicator that something is wrong. Once treatment commences, the fatigue is further compounded. It is also possible that during phases of intense treatment or illness the body can become deconditioned requiring some rehabilitation. This Fact sheet includes information about symptoms of Cancer Fatigue (CF) and form of exercise regime that has been associated with decreased muscle wasting and a reduction in CF.
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